Challenge 35

I have been going to my local MS Therapy Centre for 22 years, this year they are celebrating their 35th Birthday. Due to the Pandemic we have not been able to have a 35th Birthday Fundraiser and party, so like many other charities the Chilterns MS Centre have gone online and are holding a virtual Challange called Challenge 35, individuals have been asked to invent their own challenge but it must include the number 35. I decided to roll 35 miles in 35 different places. As my walks/rolls have gone on I have clocked up more then 35 miles and have had quite a few adventures along the way! As I write this I have completed 27 walks so have just 7 more to go. 

It’s all change

It’s been a long time since I last posted, back in 2017 I had a major relapse and it’s only been in the last few months that I have felt anywhere near normal! I have decided not to concentrate on accesible toilets but to write about the in’s and out’s of my daily life living with MS. I hope people will find it interesting if not amusing. Almost a year ago my Social Worker arranged for me to have a Personal Assistant (PA) four times a week so that my husband could go back out to work and I had someone with me for eight hours a day. Unfortunately following my relapse I have lost the use of my hands and arms so I am not safe to be left alone, to look at me you wouldn’t know, in fact my friends tell me I’m looking really well! It’s my care company that suggested I brought this Blog back to life.  So that’s my background, let see how it goes over the next few weeks. Below is a picture of me when one of my PAs took me out for the day.

Tesco Aylesbury Extra - Broadfields

Update!

What a lovely surprise to go into Tesco Extra Aylesbury and find that they have received a makeover. Really fresh, the walls are covered in a large piece of laminate which of course is wipe clean and so hygienic. The flooring is large grey tiles a huge improvement well done Tesco. - Thank you x

John Lewis - Leicester

 

A visit to Leiscester for a university interview for our daughter.

So a look round the city centre. First stop John Lewis - it's HUGE - so we stayed there!

As I have come to expect from JL - good size and nice and clean.

The Grouse and Ale

An evening out for my mother-in-law is 85th birthday spent in the lovely surroundings of the Grouse and Ale.

This was the first time I had been to a different pub since being fitted with a catheter. 

I lovingly referred to my leg bag as my Gucci bag, and like with most Gucci bags they are not oversized and the contents does need disposing of fairly regularly!

My visits to the Loo make me view what's available in a different light. Bellow are picture of what I found last night.

All in all, not only was the pub severing fine food and had excellent staff, but the Loo itself was accessible in the true sense, ie it had no additional items being stored! 

If you are ever passing Lane End I believe this is a must stop! 

Strada - Henley on Thames Oxfordshire

We reached the end of our Uni's R Us tour having visited 11 universities in readiness for our daughter next year.. Next week is also my husbands birthday so we thought on our way home we would treat ourselves.

We chose Strada as it was on the way home and has a good reputation.

The loos were great and since writing my last blog things have changed for me as I am now catheterised and I no longer need to transfer unless of course I need a number two!!

The restaurant also accommodated my wish of cutting my food up prior to it being served.

All round it was a fab experience no clutter in the Loo and great helpful staff.

5 star service and facilities.

Marquis of Cornwallis, Marchmont Street WC1N 1AP

A Fellow MSer!

It makes me very happy when I get a notification via twitter that a fellow MSer has sent me a picture of an accessible loo for me to add to my blog and that is exactly what happened this week!

The message read

@mumdean Found good pub with good disabled access loo Marquis of Cornwallis, Marchmont Street WC1N 1AP

 

The message was sent by Patrick Burke (@aid4disabled) who is a Professional speaker on Multiple sclerosis. He has SPMS (Secondary progressive Multiple Sclerosis) and wants to improve lives of other sufferers. Website http://aid4disabled.com . help progressive disabilities. Check out his website and follow Patrick on Twitter he is one knowledgeable guy. Lets all work together raising awareness.